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Rights or Ownership?

Data and digital identity in the cities

Cities driving for a European MyData roadmap

Decentralised Economy

Health Data Accessibility

Truly Global


Making friends with MyData “big words” and personal data management basics

What’s there behind, before, after and beyond MyData? What are we talking about when we talk about MyData? What does it mean on a conceptual, ideological level – and what does it mean in practice? What is the typical course of similar major societal shifts for businesses, governments, civil society – and of course, citizens? What historical examples are valuable for making the conscious shift towards human-centric personal data?

It is imperative that MyData community takes a step beyond the everyday bustle and discusses what do the core keywords - human-centric, consent, trust etc mean when looked at from different angles. Building open ecosystems around personal data in the free world demands we make the conscious effort of closing in and agreeing on the shared concepts. This track aims to tie in the loose ends across the domain to the colourful fabric of a more balanced and trustful, fairer and better society.

Keywords: Big words, historical lessons, hands-on workshop, educational, mooc - online materials, “bring your own”

 Data and digital identity in the cities

Wednesday: Elissa

10:45 - 12:00


Sarah Medjek, Ivonne Jansen-Dings, Keith Dickerson, Geoffrey Delcroix


<b>Intro: Self Data in the French Cities</b>

Sarah Medjek, Fing


<b>Dutch Policy Lab on Digital Identity</b>

Ivonne Jansen-Dings, Waag

 In June the Ministry of Interior and the VNG (United Dutch Municipalities) together with the Amsterdam based innovation lab Waag have launched the first official Dutch Policy Lab on Digital Identity: This Digital Identity Lab is looking for new ideas, concepts and concrete tools that can support a reliable and secure digital identity. As we communicate via social media, manage our finances online, buy goods and do business with the government online, we are forced to provide a huge amount of our personal data every time. For example, today the Dutch citizens maintain countless digital identities: from a Facebook profile to a webshop account and from a travel product to a DigiD. This proliferation of identities increases the risk of privacy violation, encourages identity fraud and inhibits innovation. In the lab we investigate various ideas and applications that already exist in the field of digital identity and involve a wide array of stakeholders, including regular citizens. The process is setup to find new insights that can to support future policy making in this complex field.

<b>Interoperability as a services. Semantic interoperability as a way of enabling peer to peer based models and solutions</b>

Keith Dickerson, Enercoutim

VICINITY H2020 project focused on developing semantic interoperability solutions focused on developing ways for devices owners to control data and valorise it while ensuring privacy and full awareness of what is being shared Consortium members are planning to designate two panelists to drive the discussions at the session.

The scope of the session we are working jointly on with Maria Ballestrini, who is active within this topic as well and are complementary in the scope. The third party in the panel, I hope would be TNO, specifically Laura Daniele´s team, who is working on semantic interoperability for smart appliances and smart cities along with UPM Raul Castro from our VICINITY consortium.

The idea is to present work done on the topic, present challenges and opportunities, solicit feedback and input, share use cases and have a debate around the topic and how MyData concept could interconnect with the work done in VICINITY and parallel projects mentioned above.

<b>The Platform of a City</b>

Geoffrey Delcroix

Geoffrey Delcroix will present a publication called “The platform of a city”, written by LINC ( the innovation and foresight lab of CNIL, the french data protection and privacy authority.

This document is an exploration of the issues related to smart city and data uses in urban planning and services. It contains recommendations, in particular regarding the different tools that can be used in the future to create meaningful and controlled uses of personal data for public interest purposes.

The promises of Smart city are indeed contradictory: personalizing everything while respecting the right to privacy, optimizing without rejecting. In the same time, major data companies are showing up on the market of smart cities, changing the level playing field. The challenge now is to produce new models for regulating city data, ones that respect individuals and their freedoms.

Session is moderated by Sarah Medjek

 During your session calls, please talk also about the practical needs, and fill in if needed!

Start        :                        10:45

Opening:                        10:47 ( minutes, moderator)                 

Intro of presenter 1:                10:52 (minutes, moderator)

Presenter 1:                        10:55 ( minutes)

Q&A for presenter 1:                XX:XX (minutes)

Intro of presenter 2:                XX:XX (minutes)

Presenter 2:                        XX:XX (minutes)

Q&A for presenter 2:        XX:XX ( minutes)

Intro of presenter 3:                XX:XX ( minutes)

Presenter 3:                        XX:XX ( minutes)

Q&A for presenter 3:        XX:XX ( minutes)

Closing:                        11.55 (5 minutes, moderator)

End:                                12:00

Cities driving for a European MyData roadmap

Wednesday: Elissa

13:15 - 14:30


Hervé Groléas, Marijn Fraanje, Keith Dickerson, Joonas Pekkanen (TBD)


For centuries cities and more widely public actors have been tech-followers. Indeed, in most cases the technology innovations have been emerging from the private sector, and the cities doubted first of their relevance before embarking on a late and timid adoption. But the time has changed!

<b>Towards a European Roadmap for MyData</b>

Hervé Groléas, CIO of Greater Lyon

Should cities include the MyData spreading and scaling as a part of their data public policy? If yes, in which way and how could the EU help for it?

Marijn Fraanje, CIO Den Haag

<b>Data Requirements for Smart City Cross-Domain Use Cases</b>

Keith Dickerson, Director, Climate Associates Ltd

Session is moderated by: Joonas Pekkanen (TBD)

During your session calls, please talk also about the practical needs, and fill in if needed!

Start        :                        13:15

Opening:                        13:17 (5 minutes, moderator)                 

Intro of presenter 1:                13:22 (3 minutes, moderator)

Presenter 1:                        13:25 (XX minutes)

Q&A for presenter 1:                XX:XX (X minutes)

Closing:                        (5 minutes, moderator)

End:                                14:30

Decentralised Economy

Friday: Elissa

10:45 - 12:00


Mihael Modic, Patrik Wallström, Freyr Hólm Ketilsson, Sean Moss-Pultz


Iceland and decentralised health data

Freyr Hólm Ketilsson, Dattaca

Dattaca Labs in Iceland have established a Startup studio in Iceland focusing on Startups working within decentralization. In Iceland health data has been available for about 12 months, social data even longer and financial data has just recently been made available. On the back of that this Startup studio has been established. A part of the Startup studio is the decentralization fund who has the role of writing small checks (20 per year) for founders that are taking their first steps developing their product, the fund can write follow up checks (5 per year) as well. The Startup studio premise is to minimise the product risk, product to market risk and finally team risk.

Citizen-centric innovation for the connected era

Mihael Modic, Datafund

Personal data is the most important "raw material" in the information society. Companies and other organizations collect personal data today in incredible extents. I will present how can the new data protection regulation (GDPR) in combination with the appropriate use of decentralized technology radically change the relationship of power between individuals and organizations and how trustful companies can take advantage of this change in a mutual benefit.

A non-blockchain approach to distributed identities

Patrik Wallström, Brickchain

Brickchain has developed a new set of protocols for developing a new decentralized platform for identity and permission management. With our protocol, our app and our open platform, any business can develop services to take part in a growing ecosystem of personal data, consent and secure digital identities. We will present our Integrity platform, and a few of the services we have developed, such as our booking service, and the Home Assistant access layer.

Giving individuals property rights for their data

Sean Moss-Pultz, Bitmark

The ability to possess and transfer property is a bedrock of civilized society. We own houses, cars, and second hand goods through an established system of property rights. Data deserves the same rights of ownership. A blockchain property system can allow people to easily track data and know how it’s being used, manage their records unadulterated by private company’s terms and conditions, securely transfer their data from platform to platform. People will be in control, not companies.

Session is moderated by: Marko Turpeinen

During your session calls, please talk also about the practical needs, and fill in if needed!

Start        :                        10:45

Opening:                        10:47 (5 minutes, moderator)                 

Intro of Freyr Ketilsson:        10:52 (3 minutes, moderator)

Freyr Kettilson:                10:55 (17 minutes)

Intro of Mihael Modic:        XX:XX (2 minutes)

Mihael Modic:                XX:XX (17 minutes)

Intro of presenter 3:                XX:XX (2 minutes)

Presenter 3:                        XX:XX (17 minutes)

Intro of Sean Moss-Pultz:        XX:XX (2 minutes)

Sean Moss-Pultz:                XX:XX (17 minutes)

Closing:                        (5 minutes, moderator)

End:                                12:00

Health Data Accessibility

Friday: Elissa

13:15 - 14:30


Casandra Grundstrom, Mette Kjer Kaltoft, Risto Kaikkonen, Maritta Perälä-Heape


<b>Accessibility in Finland and Denmark</b>

Casandra Grundstrom, University of Oulu

Connected Health is an overarching theme for accessibility to change the landscape for future healthcare industry. In this model, data is intrinsic to shape a holistic proactive approach to healthcare.This session will compare and contrast accessibility findings in their research for both industry and public sector, with the purpose of illustrating a human-centric design perspective with an emphasis on service design to bring value to stakeholders. We will also discuss the impact of digitalization on health data and shed some light on the challenges and opportunities going forward.

<b>Health e-decisions for all</b>

Mette Kjer Kaltoft, Odense University Hospital Svendborg Denmark

Decision support tools fall into two broad categories. ‘Inter-mediative’ Patient Decision Aids are designed for a shared decision making encounter, with the clinician in charge of aid delivery. ‘Apomediative’ Personalised Decision Support Tools (PDSTs) are designed to help the person to make the best decision for themselves, including whether to consult a clinician, empowered by a preliminary (non-medical) opinion that facilitates informed consent.

They may decide to switch to inter-mediative mode in the encounter. A PDST will combine the person’s preferences over the multiple criteria important to them with the best evidence available on the performance rates of all available options on those criteria. A technique such as Multi-Criteria Decision Analysis is required as its basis. A provider-independent, online PDST may be accessed via a secure link, giving access to the person’s health record, or anonymously on an open access ‘direct-to-consumer’ basis. The data inputs required are those available at home, including scores from publicly-accessible online instruments, outputs from home testing kits and wearable devices, person’s burden ratings for options, and their criteria weightings. The output is a personalised score for each option, visually displayed. The image is shareable, along with user-specified data, to a community registry of preference-sensitive decisions.

<b>Platform of citizen generated data - What next?</b>

Risto Kaikkonen, Solita

Session is moderated by: Maritta Perälä-Heape

During your session calls, please talk also about the practical needs, and fill in if needed!

Start        :                        13:15

Opening:                        13:15(5 minutes, moderator)                 

Intro of presenter 1:                13:20 (3 minutes, moderator)

Presenter 1:                        13: 23 (15 minutes)

Q&A for presenter 1:                13: 38 (5 minutes)

Intro of presenter 2:                13:43 (3 minutes)

Presenter 2:                        13:46 (15 minutes)

Q&A for presenter 2:        14: 01 (5 minutes)

Intro to presenter 3                14:06 (3 min)

Presenter 3:                        14:09(10 minutes)

Q&A for presenter 3                14:19 (5 min)

Closing:                        14:24 (5 minutes, moderator)

End:                                14:30

Truly Global

Friday: Arkki

13:15 - 14:30


Aki Enkenberg, Karin Christiansen, John Havens


Do you know in how many countries in the world there is no existing data protection regulation? Access to personal data yes, but how about access to internet - what the net neutrality has to do with MyData? Even if we live in globally connected world the cultural differences are real and they do affect on the way how personal data technologies and policies are spreading.

In this session we explore the MyData topics from the global perspective with experts from three international organisations IEEE Standards Association, World Bank and Open Knowledge International.

Data and Development - The Global Landscape

Aki Enkenberg, Senior ICT policy specialist at World Bank

The presentation will outline the significance of data as a development issue, a source of innovation for solving development problems and a new field for policymaking for developing countries, drawing on World Bank analysis and knowledge, as well as practical examples of projects and partnerships around the world. Key World Bank initiatives such as the Identification for Development Program (ID4D) and the principles they operate by will be discussed.

Private Data and Open Data
Karin Christiansen, Executive Director of Open Knowledge International

We believe that there are shared principles underlying both the 'open' and 'mydata' movements. A strongly open society does not have to be at odds with strong privacy regulation, but rather that the society we strive for is one that takes both of these perspectives very seriously.

Session is moderated by: John Havens, IEEE

During your session calls, please talk also about the practical needs, and fill in if needed!

Start        :                        13:15

Opening + delta-poll:        13:15 (8 minutes, moderator)                 

Intro of Aki:                        13:23 (2 minutes, moderator)

Presenter 1 - Aki:                13:25 (17 minutes)

Q&A for Aki:                        13:42 (5 minutes)

Intro of Karin:                13:48 (2 minutes)

Presenter 2 - Karin:                13:50 (10 minutes)

Q&A for Karin:                14:00 (5 minutes)

Fireside chat:                14:05 (20 minutes)

Closing + delta-poll:                14:25 (5 minutes, moderator)

End:                                14:30

BIG Words: proposal to CfP (Maria and Jogi)

Maria Macocinschi and Antti Jogi Poikola

Fri 27th (Jogi, Maria)

Next steps:

  • Maria will write first versions of session titles and short descriptions → Jogi will comment
  • Maria will send acceptance letters and suggest a calls for Dewar and Becker
  • Maria will suggest either May 9th or 10th as call time with Dewar and Becker to introduce the session idea (fishbowl etc.) and finalise the session title and descriptions.
  • Jogi will talk about the joint Aalto + Turku workshop on may 10th in our research group meeting

Session 1: TRUST & AGENCY

Three line description:


Three line description:

Flow of a sessions (1h 15min.):

  • Welcome to the session (5 min)
  • Aim of the session
  • How fishbowl works
  • Position speeches
  • Hosts: intro to the big words, how they are related to the declaration
  • 10 min.
  • Presenter(s) 10 min.
  • Big word 2:
  • Fishbowl panel 2. (35 min.)
  • Closing the session (15 min)
  • Key takeaways

Before the conference

(Pre-meeting with Aalto and Turku researchers in late May or early June)

  • Maria, Gail Maunula, Titiana Ertiö, Juha Lavapuro, Pekka
  • Jogi, Tanel, Tuukka?, Matti?, Jesse?

  • Organize an event/workshop about the “Big Words” before the conference;
  • Dry-run the fish-bowl discussions and see what comes out
  • During the conference, we should present some of the conclusions from that event;