All materials from MyData 2018 will be published on this page latest the end of September 2018. Last upadated OCT 11th.

Enjoy MyData 2018 conference presentations as videos and slides. Become a member in MyData Global organisation. Sign MyData declaration. Subscribe our newsletter to stay tuned.


Opening plenary

Moderated by: Molly Schwartz

Antti ‘Jogi’ Poikola (Main stage)[slides]

We have to embrace diversity to make MyData happen in large scale and to make it right. Businesses, legal experts, technologists and the societal thinkers are needed. MyData programme lead Antti ‘Jogi’ Poikola will help you to find your way to contribute in better digital future.

Viivi Lähteenoja[slides]

Linnet Taylor


Legal landscape (video)

Moderated by: Malte Beyer-Katzenberger

Elizabeth Renieris[slides] [podcast]

In this presentation, I will argue that the “new” Regulation isn’t so new from at least three perspectives – historical, technological, or structural.

Willem Debeuckelaere[slides]

Empowering the citizen or explicit state law enforcement?


Make it happen (video)

Moderated by: Molly Schwartz

Kirsi Pulkamo[slides] (video)

Presenting in short what Finnish Transport Safety Agency has done as a public authority in the field of mydata.

Pekka Sivonen – Business Finland (video)

Taneli Tikka – Vake (video)

Jaana Sinipuro[podcast]  (video)


Personal Data for Common Good

Moderated by: Viivi Lähteenoja

Hetan Shah[slides] (video)

How can we put data ethics at the heart of the discussion? What can we do to use data for the common good? How can we tackle data monopolies?

Jeni Tennison(video)

Strong data protection and personal data for common good? These should not be contradicting goals. Jeni Tennison from the ODI will outline some of the potential mechanisms available to ensure that data can be used for public good, to maintain trustworthiness and public support for innovation.


The Domains of Identity (video)

Moderated by: Molly Schwartz

Kaliya Young – The Domains of Identity – (video)

Tony Fish 

How do we square a circle given: a) Identity is Complex b) Privacy is Experience c) Consent is Misleading, and d) FUD sells … With Users demanding Simplicity

Lubna Dajani


Future of Web

Moderated by: Molly Schwartz

Mikko Hypponen[slides] (video) [podcast]

Roughly 30 years of history of web has shown that many things did not turn out quite as imagined in the early days. What are the key questions for the next thirty years?


Collective and Personal

Moderated by: Minna Ruckenstein

Mad Ball[slides] (video)

Can we empower ourselves collectively – from individuals to communities? Vignettes from Open Humans and reflections on the power of peer production.

Dawn Nafus(video)

How can we empower ourselves around our personal data – and potentially contribute to a greater good?


My AI in the Peace Machine

Moderated by: Molly Schwartz

Timo Honkela – My AI in the Peace Machine [slides] (video)



Rebuilding the Digital Era

Moderated by: Viivi Lähteenoja

Konstantinos Karachalios[slides] [podcast]

Marju Lauristin[slides] (video)

What is the main difference between digital and human world? We have to think about AI vs human memory, knowledge, culture, ethics, education.


MyData the disruptor (video)

Moderated by: Taru Rastas

Luukas Ilves

Jaana Sinipuro (Main Stage)[podcast]

Wil Janssen 


Closing Plenary

Moderated by: Molly Schwartz

Linnet Taylor (Closing Plenary)[slides] (video)

Linnet Taylor will summarise the most important findings of the conference in relation to the overall aim of creating usable, fair and just systems for a datafied society.


Our Data Rights

Moderated by: Martin Tisné

Jeni Tennison (Main Stage)[slides]

Strong data protection and personal data for common good? These should not be contradicting goals. Jeni Tennison from the ODI will outline some of the potential mechanisms available to ensure that data can be used for public good, to maintain trustworthiness and public support for innovation.

Frederike Kaltheuner

Paul-Olivier Dehaye

Karin Christiansen – Open Knowledge International


Practical AI ethics

Moderated by: Reggie Rusan

Fabio Massimo Zanzotto[slides] (video)

Erlin Gulbenkoglu(video)

In recent AI research and development more attention are directed to building interpretable, anonymous and fair AI systems. Erlin will explain the challenges and best practices of model interpretability, building anonymous models, data minimisation and anonymisation.

Natalia Rincón – Open Data Plus AI: The Recipe for A Smart City (video)



Moderated by: Pernille Tranberg

Stuart Lacey

Jeremy Rollison – Microsoft


MyData kansallinen keruualusta (Finnish Language Session)

Moderated by: Risto Kaikkonen

Jussi Heino – Tilastokeskus

Pekka Kahri – THL

Jan Juslen – Liikennevirasto

Teuvo Savikko – Espoon kaupunki

Pekka Mustonen – Duodecim

Ville Salaspuro – MediConsult

Markus Myhrberg – Lexia


Panel Session: Data Portability

Moderated by: Robert Madge

Paul-Olivier Dehaye

Jim Groom – A Domain of One’s Own – (video)

Daniela Gunz

Silja Lindqvist

How data portability is seen today in finance – what is happening today from business and individual perspective



Moderated by: Mikael Rinnetmäki

Geoff Revill (Case studies)[slides](video)

The Internet has changed – so should our social platforms – removing data surveillence & delivering trustworthy engagement value needs a new biz model

Alastair Johnson(video)

Personal information should be owned and controlled by the person.

Masahiro Hanatani(video)

Michele Nati (Business)[slides] (video)


How can we increase access to data while retaining trust?

Moderated by: Črt Ahlin Moderated by: Peter Wells

Jack Hardinges[slides] (video)


Technical aspects of Data Portability

Moderated by: Črt Ahlin

Frederick Richter

Jessie ‘Chuy’ Chavez – The Data Transfer Project – Show and Tell Demo

Rachel Tannenbaum

The Data Transfer Project was formed in 2017 to create an open-source, service-to-service data portability platform.

Guillaume Jacquart[slides]


Tools for data portability

Moderated by: Michele Nati

Xavier LEFEVRE[slides]

How to deal with a data portability request, benefit from compliant data-sharing and make the whole process a good experience from a user perspective.

Paul Galwas – Ocean Protocol – A new lens on data portability

Brian Willard

(keep description from original submission)

Akio Shimono[slides]

Imagine.. A ball or something floating above your head. Invisible concierge that knows all about you, helps you all the time, and never betrays you.


Wrestle the GDPR – and WIN!

Moderated by: J Cromack

Minna Vakkilainen – Kesko

Alex Cash


Interoperability and Decentralisation: Part I

Moderated by: Markus Sabadello

Kim Hamilton Duffy[slides](video)

Benjamin Goering[slides] [podcast](video)

ActivityPub enables social conversations to spread out across the web and not stay locked in just one social network. But how does it work?


Interoperability and Decentralisation: Part II

Moderated by: Markus Sabadello

Adrian Gropper[slides](video)

Agency is one’s ability to exert power. The thing that is to be my online agent must work only for me (self-sovereign) and should be standards-based.

Rouven Heck – uPort: Self-Sovereign Identity Meets Portable Data [slides] (video)

Fabrizio Leoni – eIDAS and Self-Sovereign Identity [slides] (video)

Self Sovereign Identity models can be interoperable with eIdas regulated Trust Services. We will explore Interoperability scenarios and actual POCs .



Individual Awareness

Moderated by: Hubert Le Lievpre

Rimma Perelmuter – What do people really understand about their data?

Rob Guinness[slides]

Pondenome is launching an end-to-end encrypted (E2EE) social network. We believe communication should be controlled by the people communicating.


Handpicked Live Use Cases: MyData in Action

Moderated by: Heli Törrönen

StJohn Deakins[slides] (video)

120,000 ‘Citizens’ have already transacted their my data 3.5m times for fair value.

Rory Donnelly(video)

#apps/use cases #social #financial #health data #innovation #user in control #private sharing

Sarah Medjek

Chloé Baumont – An insurance provider share with its 3M clients the data they have on them and provide its clients a personal cloud to actually use it! (Linked to Sarah Medjek Card)

Kai Kuikkaniemi (Cases)

Case study showing how individuals can utilize their own loyalty data.


Semantic Interoperability and Transparency

Moderated by: Joss Langford

Axel Polleres[slides] (video)

Let’s talk about the core components that make privacy controls interoperable: which standards already exist and how can we make them interplay?

Ben Whittam Smith – co-presenting with Axel Polleres

Christoph Fabianek[slides] (video)

Semantic Containers enable technical, semantic, and legal interoperability and create trust.

Elmar Kiesling – co-presenting with Christoph Fabianek


Hands-on Personal Data

Moderated by: Sarah Medjek

Raoul Plommer – New Digital Rights MOOC (GDPR)



Designing within the Personal Data Economy

Jacky Bourgeois

Mikael Seppälä[slides]

“Data is like Moomin mugs, everyone’s collecting but no one’s using”. Organizations are collecting data but how can we turn it into customer value?


Rights or Ownership?

Moderated by: Antti ‘Jogi’ Poikola Moderated by: Maria Macocinschi

Michael Becker – Consumer Attitudes Towards Personal Information Management (video)


Standards for Delivering on the MyData Principles

Moderated by: Kai Kuikkaniemi

Colin Wallis[slides] (video)

Kantara’s ethics & ethos, developed work and operations align nicely with the MyData Principles

Drummond Reed[slides] (video)

Self-sovereign identity is a watershed in digital identity—this talk explains why the standards will be quite different that what’s gone before.


The Blue Ocean of Ethical Personal Data

Moderated by: Kai Kuikkaniemi

J Cromack (Business)[slides](video)

Looking at the challenges organisations face in understanding their data and how they are attempting to meet the wider transparency needs of GDPR

Arikia Millikan[slides] (video)

If we don’t explore business models for online media outside of surveillance capitalism, journalism may cease to exist.

Bianca Wylie(video)


Truly Global

Moderated by: John Havens

Aki Enkenberg(video)

Data has become key for global development, helping to deliver faster, better and smarter. This requires we also manage data-related risks better.

Karin Christiansen – OKI – (video)


Out from the silos – personal data for innovation

Moderated by: Wil Janssen (Business)

Peter Eikelboom – Volksbank (video)

Titus Sips – APG (video)

Marlies Rikken – InnoValor – (video)


Data and digital identity in the cities

Sarah Medjek [slides]

Ivonne Jansen-Dings – Dutch Policy Lab on Digital Identity

Geoffrey Delcroix [slides] (video)

Presentation of the “The platform of a city” , written by the innovation and foresight lab of the french data protection authority

Keith Dickerson[slides] (video)

A lot of personal data is used to fulfil the requirements of use cases in smart cities. Is this adequately protected and how is this done?


Cities driving for a European MyData roadmap

Moderated by: Antti ‘Jogi’ Poikola

Hervé Groleas[slides] (video)

For centuries cities and more widely public actors have been tech-followers. But the time has changed!

Marijn Fraanje –

Jarmo Eskelinen[slides] (video)

Quick sweep across the state of affairs in the UK cities and the love-hate relationship between them and the ventral government.


Energy Data Sharing

Moderated by: Coutant Fabien

André Bryde Alnor[slides] (video)

How a cross border data delegation system could help customers and the energy sector. An architecture based on Sovrin and OAuth2

Lukas Keller(video) [podcast]

[Please refer to the google doc with the session description]

Xavier Furst[slides] (video) [podcast]

In an ever moving environment, economically, legally, etc, a national grid operator faces several challenges related to data access and provision

Bart Janssen – Alliander in Netherlands : multi-DSO privacy by design platform

Natalie Samovich[slides] (video)

P2P models in R&I projects and spin-offs: VICINITY2020 and SHAR-Q H2020 projects


Decentralised economy

Moderated by: Marko Turpeinen

Mihael Modic[slides] (video)

A high-level overview of some interesting decentralized technologies for personal data management for non-technical people.

Charlotte Depin – A non-blockchain approach to distributed identities

Freyr Ketilsson[slides] (video)


Health Data Accessibility

Moderated by: Maritta Perälä-Heape

Risto Kaikkonen

Casandra Grundstrom[slides]

Why do insurance companies and healthy persons access health data? What barriers do these stakeholders face when providing or using digital services?

Mette Kjer Kaltoft – Health e-decisions for all – (video)


Dimensions of interoperability

Moderated by: Antti Kettunen

Joss Langford (Interoperability)[slides] (video)

An overview of some models of interoperability and what this means for the MyData ecosystem.

Geoff Revill[slides] (video)

For at scale internet level personal data interoperability we need to move from ambiguous syntactic data exchange, to rigorous formalised semantics

Cagla Salmensuu(video)

How will the interoperability by design fare alongside the privacy by design? Join my in exploring how the legal interoperability is tackled in the EU

Petteri Kivimäki[slides] (video) [podcast]


Identity Management in the IHAN® World

Moderated by: Jyrki Suokas

Antti Larsio – IHAN Number

Juhani Luoma-Kyyny – eIDAS – Are We There Yet?

Jyrki Suokas (Interoperability)[slides] (video)


Consent in Action

Moderated by: Joss Langford

Alex Cash

Martin Sandren[slides] (video)

We start by figuring out what an informed consent is and the story behind it, to the points why it is so centric and why it should be planned with car

Andrew Hughes[slides] (video)

Kantara Consent receipts allow data subjects to catalog & act on where they agreed to data processing. We demo 5 companies exchanging receipts.

John Wunderlich[slides] (video)

The JLINC protocol replaces “Terms and Conditions” with “Permissioned Data”. This solves the problem of scale with “Notice & Consent”


Sitra IHAN®: Human-driven data economy

Moderated by: Tiina Härkönen

Hanna Marttinen-Deakins – Business Finland

Mika Nikkola

I was a panelist

Jussi Nissilä – Ministry of Economic Affairs

Toni Ruuska – Posti

Anni Ronkainen – Kesko


Design nudging and ethics

Moderated by: Sanna Marttila

Finn Lützow-Holm Myrstad – Deceived by Design

Will discuss how tech companies use dark patterns to discourage us from exercising our rights to privacy. Our latest research has looked more closely at Facebook, Google and Microsoft. #DeceivedByDesign

Minna Mustakallio


Major Use Cases from Finland

Moderated by: Koiti Hasida Moderated by: Manon Molins

Noora Lähde[slides] [podcast] (video)

Mika Huhtamäki – Trafi-Tilaajavastuu MyData trial (video)

Antti Kettunen (Cases) (video)

Samuli Mustonen[slides] (video)

KOSKI is a register that collects real-time data of everyone’s studies in Finland. A citizen can share information based on his/her consent.


Use Case Track: Synthesis & Discussion

Moderated by: Manon Molins(video)


Mechanics of fairness

Moderated by: Tuukka Lehtiniemi

Jussi Leppälä[slides]

Are algorithms more biased than human decision makers? How to make sure that algorithms are fair?

Afef Abrougui[slides]

Users remain largely in the dark about how internet and telecommunication companies handle their information according to @rankingrights research.

Walter Palmetshofer – [slides]


Governance alternatives

Moderated by: Shazade Jameson

Sean McDonald

Bruno Carballa Smichowski

There is no one-size-fits-all alternative data governance model. We will present the existing and envisioned models and assess their potential.

Markus Niessen[slides] (video)

MIDATA cooperatives empower citizens as actors in the digital society and contribute to the democratization of the personal data economy.


Debating Rights & Responsibilities

Moderated by: Linnet Taylor

Laura James[slides]

Responsible Technology considers the social impact it creates and the unintended consequences it might cause. It’s more than just data ethics! Find out about our work to define responsible technology, and to embed it in practice with tech industry product teams.

Christopher Olk[slides] (video)

Personal data may be regarded as an unjustly appropriated raw material, as the product of users’ labour, or as an embodiment of social knowledge.

Heidi Laine[slides] (video)

Right to be remembered is overlooked in discussions about personal data and privacy. It affects especially society’s underprivileged groups.


Participatory exercise around data portability

Moderated by: Črt Ahlin Moderated by: Michele Nati

Tuula Pääkkönen[slides]

Crowdsourcing features of support also data portability. An export enables users to do research on materials also offline.


The imaginarium of MyData futures

Moderated by: Mikko Lampi

Daniel Kaplan[slides] (video)

Linnet Taylor (futures) – How many utopias? (video)

Neelima SailajaLianne KerlinIan Forrester (video)

Addressing the turn towards personal data in future media, by unveiling the socio-technical responses that make this shift empowering for audiences.

Gregor Žavcer[slides] (video)

As developers, we need ethics by design. As individuals, we need to own our data.

Ren Watson[slides]

In a future world where AI runs my life, is it for good? Do I understand how I’m being controlled? Or is it just a bit creepy? Ren & Ruaridh discuss a possible future lifestyle.

Oguzhan Gencoglu[slides] [podcast] (video)

Geoffrey Delcroix (Futures)[slides]  (video)

Molly Schwartz (futures) – [slides] (video)